I finally have a chance to sit down and write again thanks to Easter Break. It is really nice to come back to my family’s home and temporarily leave the stress of school work behind.
Everyone needs a break.
I feel for my friends in the workplace who no longer have this time off…Spring Breaks, Holiday Breaks and best of all, Summer. (Makes me want to stay in school forever!! Dont worry, Dad…I won’t!) 😀
But, as I was packing, I realized there is one stressful aspect of my life I can’t take a break from: cystic fibrosis.
The daily regimen (See video below) to keep my lungs healthy is all I have ever known. Waking up and doing a nebulizer and vest treatment is as much a part of my morning routine as brushing my teeth. Every single day of the past 21 years of my life I have done up to 2 hours of treatments to make breathing a little easier.
This is my friend IV (pronounced Ivy) He is a 2 1/2 year old CF fighter and the next picture is his daily routine. IV has to take pills with every single meal to make sure he is absorbing all the nutrients from his food, all because of the havoc cystic fibrosis wreaks on his pancreas. Some CF patients take up to 60 pills a day.
Trust me, I have tried to take some time off from cystic fibrosis. For the first time in my life, I became quite lackadaisical with my daily routine when I moved to NYC in the Fall. I landed myself in the hospital for 2 weeks. I learned my lesson.
That’s why this preventive care is so important. That’s why research is so important. That’s why people like you who support cystic fibrosis research are so important. Research is not only “adding tomorrows” for cystic fibrosis patients. It is adding quality to our todays. So maybe someday, IV and I can take a break and