Thank you all so much for sharing the New York Daily News article!! The stair climb at Citi Field was a great success — it was incredible to see over 200 participants for the first climb! That is all thanks to the hard work of the wonderful people at the Cystic Fibrosis Foundation Greater New York Chapter and their dedicated volunteers.
Thanks to events like the climb and the generous supporters who donate their time, money and energy to finding a cure for cystic fibrosis, we have made major strides in the fight against CF. The lifespan has doubled over the past 30 years and equally as important, the quality of life of patients has improved. Yesterday, the Cystic Fibrosis Foundation received $3.3 billion from selling drug royalties. (You can read the CFF’s release here and the NY Times article here.) The trailblazing efforts of the CF Foundation resulted in this remarkable return on smart investments in cystic fibrosis research.
That number is huge and exciting. But, this is not the time to take a backseat on fundraising or donating. On Sunday at Citi Field, I met a girl my age climbing for her best friend who passed away in June from cystic fibrosis. We are still losing too many, far too young to this disease.
That’s why I speak out. Being so public about a very personal battle is a constant struggle for me. There are days when I want to close all the doors I have opened and quietly fight this. But I do it because I am able. I can, so I should. I owe it to the many patients waiting for their second double lung transplant, to those who were never able to realize their biggest dreams, to the young families that have to learn what cystic fibrosis is and how to face it.
So, while I hope this news can be celebrated, I hope you all will continue to join me in supporting the innovative efforts of the Cystic Fibrosis Foundation.