Meaningful May

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May is Cystic Fibrosis Awareness month.

May is for Miracles. (Children’s Miracle Network)

May is Miss New York month.

So, you may be hearing from me a lot throughout the next 31 days 😉

I was able to get a head-start on this Meaningful May on Wednesday when I went to New Brunswick, NJ to visit the cystic fibrosis clinic at Robert Wood Johnson University Hospital and its neighbor Children’s Specialized Hospital, a Children’s Miracle Network Hospital.

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Presenting Dr. Thomas Scanlin with a $3000 donation from Singing at the Top of My Lungs

Dr. Thomas Scanlin diagnosed me with cystic fibrosis (CF) before I was born. He has administered outstanding care for me over the past 21 years and I quite literally trust him with my life. So, I was absolutely thrilled to donate $3,000 from my foundation, Singing at the Top of My Lungs, to his CF clinic.  Dr. Scanlin expressed his appreciation for this donation which will help fund important research and clinical trials, as well as support families battling cystic fibrosis.  This donation would not have been possible without my foundation’s supporters and for you, I am forever grateful.

While I was in the neighborhood, I was able to stop by Children’s Specialized Hospital for an incredible tour with my friend Kaitlin Davis, their Children’s Miracle Network Program Manager.

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Touring Children’s Specialized with the lovely Kaitlin Davis 🙂

Children’s Specialized is our nation’s largest pediatric rehabilitation hospital with a typical patient stay lasting 3-6 weeks. I was so impressed with their commitment to family-centered care.  There are spacious family lounges with great views to give patients and their parents and siblings a change of scenery from their hospital room.  The floors have recreational rooms which are trauma-free and allow these young patients to escape their rehab therapies and just be kids. Children’s Specialized is a phenomenal representation of the quality of care given in our country’s Children’s Miracle Network Hospitals.

Last night, I hosted a Children’s Miracle Network fundraiser as Miss Metropolitan at Jasper’s Taphouse in Hell’s Kitchen.  With the help of my fabulous friends and several supportive strangers, I was able to kick-off “May is for Miracles” with a bang!

More coming your way very soon…

❤ Always

Julia Rae

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Cheers For the Kids! at Jasper’s Taphouse

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